How can I participate?
A pool of patients, family members and caregivers
The National Center for Translational Cancer Research (NCTCR) is committed to involving patients in our new research projects and initiatives. Our goal is to ensure that the needs of patients, their families and caregivers are heard and represented.
In this vein, the NCTCR is creating a pool of patients, families and caregivers to collaborate with them and incorporate their perspectives into NCTCR activities.
Objective of the pool
The primary objective of the pool will be to facilitate meetings between researchers and patients to discuss future research directions. Patients have experiential knowledge of living with cancer, which complements well the scientific knowledge of the researchers. This kind of collaboration humanizes research by taking into account the real needs of patients.
Individuals who wish to participate will be invited to:
- share their experience of living with cancer
- share their experience of caring for a loved one with cancer,
- participate in meetings with researchers to ensure that research questions are relevant to patients’ needs,
- review the content of materials dedicated to patients and the general public to ensure that the language used is understandable,
- participate in NCTCR events.
Who can join the pool?
We are interested in listening to and working with people from all walks of life, regardless of their experience with cancer or their age, including:
- people with cancer,
- people who have survived cancer
- Family members of people with cancer,
- Caregivers of people with cancer,
- People interested in cancer research.
Send an email to firstname.lastname@example.org